The latest news from PTC

This July, PTC Italy was proud to support an event designed to give families and children with muscular and neuromuscular disabilities the opportunity to learn about wheelchair sport and especially try different types of sports that are accessible to all. The event, titled ”SPORT AND DISABILITY… FROM DREAM… TO REALITY!” was held on 2nd July…

We fondly cherish Daniel’s life, his charisma, and achievements.

Alethia Young’s journey to become a PTC Board Member began with a reverence for doctors. When she was young, her grandfather had glioblastoma, which resulted in long stints in the hospital. It was during this time that she began to idolize the doctors and nurses caring for her grandfather, and decided she wanted to become…

The PTC Emerging Leaders program came to Hege Sollie-Zetlmayer, SVP, Human Resources, in a dream. “I wanted to create a program that was tailor-made for PTC, for the culture we have and want to keep at our company,” said Hege. “The goal was to create a program that would help future PTC leaders address a…

For too many people living with rare diseases, getting a correct diagnosis is a lengthy process that negatively impacts patients and their family. Through an innovative research collaboration called Screen4Care, PTC will be working alongside 36 international partners from academia, industry, and patient advocacy organizations to find solutions to shorten the path to diagnosis and…

At PTC Therapeutics, we continue to be inspired by the communities we serve. We are proud to be sponsoring this year’s IWAS Powerchair Hockey World Cup, which is taking place from the 9th – 14th August 2022, in Switzerland. The IWAS Powerchair Hockey World Cup is the most important international competition for powerchair hockey athletes.…

Dr. Chet Ridall Villa from Cincinnati Children’s Hospital Medical Center specializes in Cardiomyopathy, Heart Failure, and Transplantation and is particularly passionate for taking care of children and young adults with Duchenne muscular dystrophy (DMD), RASopathies, and those in need of ventricular assist device therapy and heart transplant. Together with Dr. Villa in this episode we…

Shelley received the Caregiver of the Year 2022 award from the charity Muscular Dystrophy UK.

This episode is dedicated to discussing Duchenne Muscular Dystrophy (DMD) continuum of disease and importance of continuation of care in Duchenne Muscular Dystrophy (DMD). Hear from our expert guest speaker, Dr. Mayer from Children’s Hospital of Philadelphia (CHOP) about the recommended DMD standard of care guidelines with regards to ongoing patient management and care. Return…

Feriel's Duchenne diagnosis hasn’t stopped her from having a positive outlook.