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The latest news from PTC

  1. Meet the Swiss National Team for the 2022 IWAS Wheelchair Hockey World Cup

    Powerchair hockey is a team sport played by athletes who require the use of an electric wheelchair in their day-to-day lives. Athletes have disabilities ranging from Muscular Dystrophy or SMA, to cerebral palsy or severe spinal cord injuries. Learn More about the 2022 IWAS Powerchair Hockey World Cup Meet the Swiss National Team
    Rare Disease Community
    July 29, 2022
    1 minute
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  2. “On the playing field I am an athlete instead of a wheelchair user”

    ”Your child is severely physically disabled” – after giving this kind of diagnosis, physicians are faced with an important task: to give desperate parents some perspective. Impossible? Not at all! Because even with a severe disability, so much is possible – sometimes even a world championship title. Let yourself be inspired. Sport at the highest…
    Rare Disease Community
    July 29, 2022
    2 minutes
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  3. IWAS Powerchair Hockey Game Schedule

    Powerchair hockey is a team sport played by athletes who require the use of an electric wheelchair in their day-to-day lives. Athletes have disabilities ranging from Muscular Dystrophy or SMA, to cerebral palsy or severe spinal cord injuries. Learn More about the 2022 IWAS Powerchair Hockey World Cup
    Rare Disease Community
    July 29, 2022
    1 minute
    Read More
  4. PTC Italy supports “SPORT AND DISABILITY… FROM DREAM… TO REALITY!”

    This July, PTC Italy was proud to support an event designed to give families and children with muscular and neuromuscular disabilities the opportunity to learn about wheelchair sport and especially try different types of sports that are accessible to all. The event, titled ”SPORT AND DISABILITY… FROM DREAM… TO REALITY!” was held on 2nd July…
    Rare Disease Community
    July 29, 2022
    1 minute
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  5. Daniel: Writer, Director and Producer

    We fondly cherish Daniel’s life, his charisma, and achievements.
    Rare Disease Community, Rare Journeys
    July 22, 2022
    2 minutes
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  6. PTC Welcomes Alethia Young to the Board of Directors

    Alethia Young’s journey to become a PTC Board Member began with a reverence for doctors. When she was young, her grandfather had glioblastoma, which resulted in long stints in the hospital. It was during this time that she began to idolize the doctors and nurses caring for her grandfather, and decided she wanted to become…
    Business & Finance
    July 22, 2022
    3 minutes
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  7. Enriching the Pipeline of Future Leaders: PTC’s Emerging Leaders Program

    The PTC Emerging Leaders program came to Hege Sollie-Zetlmayer, SVP, Human Resources, in a dream. “I wanted to create a program that was tailor-made for PTC, for the culture we have and want to keep at our company,” said Hege. “The goal was to create a program that would help future PTC leaders address a…
    Our Culture
    July 14, 2022
    4 minutes
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  8. PTC joins Screen4Care to shorten the diagnosis journey for people living with rare diseases

    For too many people living with rare diseases, getting a correct diagnosis is a lengthy process that negatively impacts patients and their family. Through an innovative research collaboration called Screen4Care, PTC will be working alongside 36 international partners from academia, industry, and patient advocacy organizations to find solutions to shorten the path to diagnosis and…
    Rare Disease Community, Science & Innovation
    July 12, 2022
    1 minute
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  9. Supporting the 2022 IWAS Powerchair Hockey World Cup!

    At PTC Therapeutics, we continue to be inspired by the communities we serve. We are proud to be sponsoring this year’s IWAS Powerchair Hockey World Cup, which is taking place from the 9th – 14th August 2022, in Switzerland. The IWAS Powerchair Hockey World Cup is the most important international competition for powerchair hockey athletes.…
    Rare Disease Community
    July 8, 2022
    1 minute
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  10. DMD: continuum of disease and importance of continuation of care, relating to Cardiopathology

    Dr. Chet Ridall Villa from Cincinnati Children’s Hospital Medical Center specializes in Cardiomyopathy, Heart Failure, and Transplantation and is particularly passionate for taking care of children and young adults with Duchenne muscular dystrophy (DMD), RASopathies, and those in need of ventricular assist device therapy and heart transplant. Together with Dr. Villa in this episode we…
    Rare Disease Community
    June 28, 2022
    2 minutes
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