The latest news from PTC

Philip is the first person ever with Duchenne to win a gold medal in any event at the Paralympics.

Lizanne wants to increase recognition for disabled people in the acting and film industries.

Meet Gabriela, a young and talented author of a children’s book, "Timothy’s Magic Wheelchair".

Hulda created Dancing for Duchenne to encourage positivity through hard times.

As more and more boys and young men with DMD are transitioning into adulthood, there is an increasing emphasis on quality of life and psychosocial management. In this episode, we are joined by Sarah Stoney, licensed social worker from Children’s Hospital of Philadelphia for a discussion about considerations and strategies for social aspects of care.…

Laura helps others navigate life with Duchenne and live every day like the best day ever.

Kelly Heger went back to school and trained as a nurse after her daughter Jillian was diagnosed with AADC deficiency (AADCd), a rare fatal pediatric disorder, over 26 years ago. Kelly was determined to understand the complicated medical language used by her daughter’s doctors and to play a pivotal role in the round-the-clock medical care…

Guðjón use his experience living with DMD to advance understanding of genetic disorders.

Andrea combines his passion for graphic design with his desire to help those living with Duchenne.

In this podcast episode, our guest speaker Dr. Diana Castro, associate professor of pediatrics, neurology and neurotherapeutics at the University of Texas Southwestern, shares her extensive clinical knowledge and discusses the clinical, diagnostic and medical landscape in Duchenne muscular dystrophy (DMD). In addition, she speaks about management approaches in the care of DMD. Return to…