The latest news from PTC

Guðjón use his experience living with DMD to advance understanding of genetic disorders.

Andrea combines his passion for graphic design with his desire to help those living with Duchenne.

In this podcast episode, our guest speaker Dr. Diana Castro, associate professor of pediatrics, neurology and neurotherapeutics at the University of Texas Southwestern, shares her extensive clinical knowledge and discusses the clinical, diagnostic and medical landscape in Duchenne muscular dystrophy (DMD). In addition, she speaks about management approaches in the care of DMD. Return to…

Elijah doesn't let Duchenne hold him back.

Aida and her husband founded the Lebanese Association for Neuromuscular Diseases (L.A.N.D.) in 2011, following their son Wafik’s diagnosis with Duchenne muscular dystrophy. At that time, they encountered a lack of information and support for their family and others living with neuromuscular diseases in Lebanon. They realized there was a need for a community organization…

In this episode, we meet three fantastic, young men who live with Duchenne muscular dystrophy, and who, by following their interests, have developed exciting lives and careers. Björn Jönsson is self-employed with a strong commitment to the Swedish Foundation for Muscular Dystrophy Research, among other causes. He also works with gaming development under the motto…

ASCADIM provides physical, psychological, and social care to people with muscular dystrophies in Southern Brazil. The organization was created based on insights from parents on the despair they felt following diagnosis and their desire for more and trusted information. Via ASCADIM, patients and their families can access vital support, guidance, and free physical therapy –…

Sebastien is determined to improve accessibility for people who live with a disability.

Abdulla, who lives with Duchenne, supports others with disabilities.

Pedro, who lives with Duchenne, has many passions and interests.