News, talk and articles
The latest news from PTC
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Pedro Lives Life to the Fullest
Pedro, who lives with Duchenne, has many passions and interests. -
Patrick Chases His Dreams
Duchenne has never stopped Patrick from chasing and realizing his dreams. -
B.J. Viau: Turning Hope into Help for the Huntington’s Disease Community
B.J. Viau is a lifelong Huntington’s disease (HD) advocate and has served as Board Chairman of the Huntington’s Disease Youth Organization (HDYO). The following article was contributed to the PTC Newsroom to help spread awareness about HD. Follow him on Twitter @BJsView. Do you have a rare disease story to share? Contact our news team… -
Amazon Duchenne Community CAN Count on Leandro – #DuchenneCan
At PTC, we’re passionate about supporting those living with rare diseases, even when they live in the most inaccessible parts of the world. Leandro, a PTC colleague in Brazil, plays a key role in educating physicians in remote areas along the Amazon River. He shares information about Duchenne muscular dystrophy (DMD), and has helped make… -
Júlio Engineers a Successful Future
Júlio is a determined man living with Duchenne who is studying electrical engineering. -
Lessons Learned from My Sibling with Duchenne
Emily shares the lessons learned from her brother, who lives with Duchenne. -
Striving to Change Perceptions
Tiffany, who's son has Duchenne, motivates others to focus on abilities rather than disabilities. -
Benni’s Mission to Protect the Environment
Benni is determined to educate others on the importance of environmental protection. -
Keeping Community Connections Strong – #DuchenneCan in Hungary
With the ongoing coronavirus pandemic keeping us physically apart, the Healing Goodwill Foundation – Duchenne Hungary began to find new ways to connect with their local Duchenne community and continue to provide valuable support. By strengthening its virtual presence, the Foundation has been able to stay in contact with affected patients and their families through… -
Supporting Families Affected by Duchenne
Christopher helps families experiencing the challenge of receiving a Duchenne diagnosis.