The latest news from PTC

Felix channels his passion and studies to changing the workplace for people with disabilities.

The Patient Engagement (PE) team at PTC is passionate about education and support of a family’s rare disease journey, and this commitment includes support for patients and their families in the Spanish-speaking community. The team began meeting with the Spanish-speaking community in Puerto Rico more than five years ago, and realized there were minimal resources…

Congratulations to France, the 2023 FIPFA Powerchair Football World Cup champions, who defeated England in a thrilling Final complete with a shootout tiebreaker! Placing in 3rd after England was the USA. Last week brought great excitement and opportunity to showcase the true meaning of inclusion at Quaycentre Sydney Olympic Park in Australia.  In one media…

Despite living with SMA, there’s not much that Juan hasn’t already achieved.

By Rafael Sierra, Executive Director, Global Medical Affairs – Global Gene Therapy Lead Rare and ultra rare diseases present unique challenges for research and healthcare, especially when patients are geographically dispersed, and the condition presents with high heterogeneity. Disease registries have emerged as a valuable tool to continue understanding the disease progression and the natural…

Juan Bautista D’Angelo is a powerchair football player on the Argentinian National Team and Sebastián Tisera is the team’s coach. The team is among 10 nations competing at the FIPFA Powerchair Football World Cup in Australia, October 15-21. Regarded as a rising power in the world of powerchair football, Argentina is ready to challenge the…

Scott Hilland and Sean McKinney are two very passionate and confident powerchair football athletes playing for the Northern Ireland team at the FIPFA Powerchair Football World Cup 2023. Together the two young men have 19 years of experience on the playing field which will set them and their team up for success. In this interview…

This October, the Republic of Ireland team will be competing at the FIPFA Powerchair Football World Cup 2023 in Australia. Equipped with good ball shooting skills, leadership, strong team spirit and competitiveness, Ireland’s diverse team is well positioned to “close the gap in the top 3”.  PTC had the great pleasure to witness this firsthand…

Latin America (also referred to as LATAM) is a vast region with almost 600 million people – and therefore, many people there are impacted by rare diseases. “Having a presence in LATAM is incredibly important for PTC, as it allows us to increase access to our treatments for people living with rare diseases in this…

PTC employee and wheelchair football player Luke shares why he is passionate about the sport.