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The latest news from PTC

  1. Take on Duchenne Podcast: Cardiomyopathy Associated with Duchenne Muscular Dystrophy

    In this episode with Dr. Linda Cripe, we learn more about cardiomyopathy associated with Duchenne Muscular Dystrophy (DMD). We discuss care consideration and management strategies especially pertinent for manifesting DMD carriers and why screening and monitoring is so important. What more could be done to support carrier moms? Listen to the podcast to learn more.…
    Rare Disease Community
    March 8, 2023
    2 minutes
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  2. International Women’s Day 2023: Embrace Equity

    March 8 is International Women’s Day (IWD), a global celebration of the social, economic, cultural and political achievements of women around the world. IWD is also call to action for accelerating women’s equality; Embrace Equity is the 2023 theme. Per IWD: The aim of the IWD 2023 #EmbraceEquity campaign theme is to get the world…
    Our Culture
    March 7, 2023
    3 minutes
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  3. Meet Claudia: A Mompreneur and Duchenne Advocate

    Learn more about Claudia, a mother, caregiver, social media content creator & Duchenne advocate.
    Rare Disease Community, Rare Journeys
    February 21, 2023
    3 minutes
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  4. A Duchenne Dad and Esports Motivator

    Martin supports his son, who lives with Duchenne, and his passion for online gaming.
    Rare Disease Community, Rare Journeys
    February 2, 2023
    4 minutes
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  5. Lila Empowers Others to Embrace Who They Are

    Disability activist and performer living with Duchenne, Lila, encourages people to be themselves.
    Rare Disease Community, Rare Journeys
    December 20, 2022
    2 minutes
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  6. Take on Duchenne Podcast: Women & Duchenne

    We are dedicating this episode to ‘Women & Duchenne’ in honor of World Duchenne Awareness Day which takes place every September 7. Tune in to hear from three incredible women: a clinical expert, a mother who is also a carrier and caregiver, and a scientist share their knowledge, perspectives and experiences. Each has a set…
    Rare Disease Community
    November 21, 2022
    3 minutes
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  7. PTC Planting Trees for the Future

    Last week in Switzerland, PTC colleagues teamed up to plant trees in an effort to make an environmental impact. In partnership with OneTree Planted and Almighty Tree this year, 100 Oak trees were planted to help combat climate change and prevent biodiversity loss for generations to come. Tree planting is critical to reforestation and afforestation…
    Our Culture, Responsibility
    November 7, 2022
    1 minute
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  8. Paralympic Gold Medalist Shares His Love for Boccia

    Gold medalist Adam, who lives with Duchenne, shares his journey to the Paralympics.
    Rare Disease Community, Rare Journeys
    October 24, 2022
    3 minutes
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  9. Lukas Empowers People with Duchenne to Live Self-determined Lives

    Lukas encourages independence by improving workplace skills for those in the disabled community.
    Rare Disease Community, Rare Journeys
    October 6, 2022
    2 minutes
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  10. Benjamin Urges Duchenne Community to Focus on Positive Experiences

    According to Benjamin, living with Duchenne means you CAN live the life you want
    Rare Disease Community, Rare Journeys
    September 13, 2022
    2 minutes
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