News, talk and articles
The latest news from PTC
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Take on Duchenne Podcast: Cardiomyopathy Associated with Duchenne Muscular Dystrophy
In this episode with Dr. Linda Cripe, we learn more about cardiomyopathy associated with Duchenne Muscular Dystrophy (DMD). We discuss care consideration and management strategies especially pertinent for manifesting DMD carriers and why screening and monitoring is so important. What more could be done to support carrier moms? Listen to the podcast to learn more.… -
International Women’s Day 2023: Embrace Equity
March 8 is International Women’s Day (IWD), a global celebration of the social, economic, cultural and political achievements of women around the world. IWD is also call to action for accelerating women’s equality; Embrace Equity is the 2023 theme. Per IWD: The aim of the IWD 2023 #EmbraceEquity campaign theme is to get the world… -
Meet Claudia: A Mompreneur and Duchenne Advocate
Learn more about Claudia, a mother, caregiver, social media content creator & Duchenne advocate. -
A Duchenne Dad and Esports Motivator
Martin supports his son, who lives with Duchenne, and his passion for online gaming. -
Lila Empowers Others to Embrace Who They Are
Disability activist and performer living with Duchenne, Lila, encourages people to be themselves. -
Take on Duchenne Podcast: Women & Duchenne
We are dedicating this episode to ‘Women & Duchenne’ in honor of World Duchenne Awareness Day which takes place every September 7. Tune in to hear from three incredible women: a clinical expert, a mother who is also a carrier and caregiver, and a scientist share their knowledge, perspectives and experiences. Each has a set… -
PTC Planting Trees for the Future
Last week in Switzerland, PTC colleagues teamed up to plant trees in an effort to make an environmental impact. In partnership with OneTree Planted and Almighty Tree this year, 100 Oak trees were planted to help combat climate change and prevent biodiversity loss for generations to come. Tree planting is critical to reforestation and afforestation… -
Paralympic Gold Medalist Shares His Love for Boccia
Gold medalist Adam, who lives with Duchenne, shares his journey to the Paralympics. -
Lukas Empowers People with Duchenne to Live Self-determined Lives
Lukas encourages independence by improving workplace skills for those in the disabled community. -
Benjamin Urges Duchenne Community to Focus on Positive Experiences
According to Benjamin, living with Duchenne means you CAN live the life you want